Do any moms have any experience in craniosynostosis?

Hey moms ! My baby recently received a diagnosis of craniosynostosis, are there any of moms with experience in this ? Looking for support and information ^.^
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I know a couple kids who had it but don’t have experience with my own

@Lele my son is actually getting his measurements tomorrow for his and will be getting it shortly after that. I love my doctor and he made the entire process simple and easy. How long did they recommend treatment for your little one?!

I have to travel for a nuero surgeon so not sure yet, hoping to know soon 💕

@Jordan I have to travel for a nuero surgeon so not sure yet, hoping to know soon 💕, may I dm you

@Lele yes of course you can DM me!

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