Mentally drained

So today, my partner and I got the news that my one month old daughter has a hole in her heart and has been diagnosed with a ventricular septal defect, and I genuinely just feel so overwhelmed by everything that they told us. We've got to minimise contact with people because if she was to get ill, then she would really struggle with her breathing cos essentially her blood is pumping into the wrong lung due to the hole 😪 they've also said they're not happy with her weight gain cos she's put on 4oz in 2wks so they've given her medication to hopefully help with that as well as medication to hopefully help with her breathing so she doesn't overcompensate with it. But I just feel so helpless and like I've done something wrong. They said there is a chance it could repair itself, but they won't know fully whilst she's still so small 😪 I just feel so upset and I'm doing my best to keep it together for her so she doesn't pick up on it 😪
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I’m so sorry to hear you’re going through this. Your feelings and worry are very valid. I don’t think this is something you come have prevented so try not to be hard on yourself and it sounds like there’s a chance it can repair maybe do some research and see if there’s anything you can do to help strengthen those odds. I would always suggest getting more than one opinion too when it comes to big things like this and treatment options. Sending all the positive energy and prayers your way mama.

There's nothing you could've done. Breathe. You're an amazing mom!

Im so sorry girl. I pray you get peace and comfort through this difficult time. 🙏

🙏🏼❤️ healing ❤️‍🩹 to you and your little one xxx

I was born with an atrial septal defect, this was 34 years ago! I know how my mum felt and how worried she was, but I want to reassure you it’s absolutely nothing you have done. We’re all born with holes in the heart, they are supposed to heal, others take longer, others need medical intervention but either way it’ll be totally fine. Take some deep breaths and I’m sending you loads of hugs xx

@Leanne thank you so much for this, this gives me a lot of reassurance. I didn't know everyone was born with holes. They said it could mean surgery but at the moment they're just hoping it'll heal by itself which is what we're hoping for xx

I’m so sorry you are going through this. My daughter was older when they figured out why she kept getting wore out easily and literally turned blue on us. She had same thing she would play and all of a sudden would just lay down and want to sleep or rest. She was 6 months old when they diagnosed her I had to go to a specialist to find out what was wrong. Also they told us not to let her get too excited but it’s hard not to when state fair is in town or she went on pony ride as she got little older. Age 2 she finally got heart surgery but we were so lucky instead of open heart surgery they went up through her leg to her heart. She had some scarring on her leg but it healed. She had large hole in her heart but they found 2 holes. We have to watch her she an adult now but they thought at 21 yrs old she would need another surgery but she hasn’t as of yet and is 23 years old now. Her daughter who is 4 has a hole in her heart but luckily it hasn’t gotten bigger.

If you ever need to talk I’m here to listen I know how scary it is but it’s going to be ok. My daughter got to be a round family and friends but yes If they were sick we asked them to please stay away until they are all better. Breathe momma we got so much information and scenarios thrown at us and we cried and was scared but I let my daughter have a normal life I just watched her.

My 23 year old has gone on to have a good life now since her surgery and has 2 kids and c section and still doing great

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