Prolactinoma (pituitary tumor) Support Group

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Prolactinoma (pituitary tumor) Support Group

This group is intended for women who have been diagnosed with a pituitary tumor. To share their experiences, find support, and to connect with other women who share this diagnosis. Pituitary tumors can cause numerous unpleasant symptoms one of the most common symptoms is infertility.

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72 members

Latest Posts

K

K in Fertility treatments

New

Hi all I haven’t been diagnosed with anything yet but my prolactin levels are 2057 which is very high and I’m scared about my future. If it is a tumour is it treatable and can I go in to have babies. Tia

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6 comments
K

K in Other

New to the world of Prolactin

Hi girls, I am very new to this world of having very high prolactin and trying to learn all I can. I fell pregnant in September last year but unfortunately our baby stopped growing at 11+5, weeks. We found out at the 12 week scan and had to have a surgical management for a missed miscarriage. Since then we have ...

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1 likes,3 comments
Incognito

Incognito in Trying for a baby

High Prolactin

I have recently had a blood test that shows my prolactin levels are high (830 miu/ml or 39ng/ml) I am waiting on a follow up test later this month. I have regular cycles but OPKs don't pick up an LH peak on some months. Does anyone have any success stories of conceiving with high prolactin or after getting the...

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1 comments
Incognito

Incognito in Trying for a baby

High(really high) prolactin

My prolactin level has been high last 3 months. May 582, sep 1582 and 800, oct 3500 😭 Waiting on endocrinologist appointment. I did ovulate this month, really bad cramps and ovulation pain, confirmed by LH strips and BbT spike 3 days after ovulation. So I'm in my TWW. First month trying If i don't get pregnant i kn...

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1 likes,2 comments
S

S in Baby care

Neurosurgery

I recently had brain surgery to have my tumor removed two weeks ago. I am still recovering but I am so glad that I went through it and got it done with. My neurosurgeon was amazing and was able to fully remove my tumor with the help of the ENT surgeon. I am already feeling better. My prolactin is back to normal and ...

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1 likes,3 comments

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