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Polydactyly Syndrome is extra digits (thumbs, fingers, and toes) Syndactyly Syndrome is were thumbs, fingers, and toes are fused or webbed together. I myself had 6 toes and webbing on both of my feet. I had surgery to remove my toes, still have 3 of my toes webbed. My son has both Polydactyly & Syndactyly Syndrome on both hands and feet. I am creating this group to connect with familiar people with the same experience to share journeys, information and support each other and to get awareness.
R in Baby milestones
His doctor has us see a surgeon a few times there all said that we should wait til he’s older (he’s now 19 months) the picture is old but it’s all I can find atm all the surgeons we’ve seen say that it wouldn’t affect his walking running etc. I love his little toes!, But I just don’t want him to hate me in the futu...
A in Other
Hi ! My baby has six fingers on both his feet. We have doctor consultation after he turns 18 months. I am so worried of what to expect, he is walking properly so his extra fingers are not creating any problem. We are in big dilemma that we should get them removed or not. Can anyone please share their experience of h...
D in Pregnancy scans
hi, my name is Des, im 22 years old, I’m 20 weeks pregnant and I’ve just been told at my anatomy scan that my son has Polydactyly, he has two extra fingers or digits, one on each hand. I had no idea how to feel when I found out about this, or what to ask. But I felt myself move past it because this is my baby boy a...
J in Parties & celebrations
Hello this is my son Leo, he was born on November 10th 2023. He was born an extra digit on each hand. I feel like I have no idea about it or how it will be treated. So I’m very happy to have found this group. I feel like we’ve had no communication to what is going on with it or any information. I’d just love to he...
Incognito in Baby care
My 3 month old girl is having her first consultation at the end of this month, I was just wondering what questions did everyone ask? I’m a first time mum and just a little lost.
