My baby girl with complex needs

Hiya! I was just wanting to reach to anyone who has a baby or toddler with ACC? (agenesis of the corpus callosum) my baby girl is 7 months old and we’ve known from 20 weeks pregnant, she has multiple health conditions caused by brain abnormalities, she also has epilepsy but I was just wondering how everyone else’s baby or toddler is getting on? Look forward to hearing your experiences 😌 here’s my little warrior x
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I don’t have any experience with anything like this (worst I’m dealing with is breastfed jaundice) but look at how happy your baby girl is!! She’s absolutely adorable😊

@Megan she’s honestly the most laid back little one, this picture is a rarity because it’s rare she smiles 99% of the time she just gives you the side eye 😂 aww no, how’s that going? X

So beautiful 😊 x

She is adorable ♥️ I also don’t have experience with this most I dealt with was a premie baby (born at 33 weeks) back in April..she’s anemic at the moment but that’s about it.

@Millie mine often rocks either the side eye or the grumpy old man face most of the time so😂 but it’s definitely going, thankfully the doctors said they aren’t concerned enough to keep drawing blood for testing which is good! So for now we’re just keeping up with feeding every 2-3 hours in hopes it’ll clear up eventually!

@Karan Thankyou x

I bet it’s scary for you x

Awww your baby girl is absolutely adorable

@Megan honestly you would think someone annoyed her, we had her in hospital over the weekend and she did what looked like she stuck two fingers up at the doctor who assessed her, we’re convinced she remembers him from when he took her bloods a few weeks ago 😂 x

@Denise Thankyou x

Millie your daughter is gorgeous 😍 our little girl was born with right eye Coloboma and microphthalmia, it means small eye and severe visual impairment. She only has full vision in one eye, and was born in October 2023, so far she's been a complete warrior and met her milestones so far. I'm often in hospital appointments but she's such a happy sweet girl, I feel like the luckiest mum to have her 💓

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