Mummies with Fibromyalgia and related conditions in the UK

Having a high attention needs 4 year old in the school holidays with fibromyalgia & chronic fatigue syndrome is hard. Don't get me wrong, I love her to bits & want to enjoy spending time with her. But I'm not good at playing toys, I just find it so boring, and the constant demand for a response when I spend my life trying to minimise the amount of things I have to respond to is so exhausting. I'm better at taking her to the park & supervising messy activities like collaging & painting. We don't have a car & live at the top of a steep hill (with the bus stop at the bottom of the hill) so I don't always have the energy for the park. & there's only so long a 4 year old can craft for.

Im currently 13 weeks with my first baby. Have had fibromyalgia since 2019 and noticed my back and hips are really hurting is this normal for fibro and pregnancy. Unfortunately I cant take any painkillers either.

Hi everyone,

I hope you don’t mind me posting this.

About 4 months ago I had a very quick, unmediated home birth without any health professionals present (this wasn’t planned). Since then I’ve been experiencing a lot of symptoms that seem similar to fibromyalgia.

I am in contact with my GP, but I just wanted to ask if anyone here has experience with fibromyalgia and how it is diagnosed?

I’m feeling quite stressed and uncertain at the moment, so any advice or shared experiences would be really appreciated.

Thank you in advance.

Hey, Wondering if anyone has ideas for relatively nutritious meals that are so easy especially during flare ups. I can't stand for long and my hands are struggling a lot. Have a 2 year old so ideally taking that into account. He eats pretty well and loves most food

Hey, I’m 23 and just been diagnosed with fibromyalgia. I have a 10 month old and I am really struggling with the extreme fatigue. I’m finding harder and harder every day I ache I always have a headache, it’s just tough out here. At the moment even putting my baby in his bed is tear inducing and I feel I put so much on my partner and that weighs heavy on me, even though he is literally an angel with it.

Anyway I would really like to give my boy a sibling one day but I also know this illness could get worse over time. I’m scared that we won’t be able to have another due to my fatigue and pain. So I think for us it’s start trying now or just enjoy our little boy. However I am super worried about what having another will do to my body and I just don’t know where to go. The doctors have been super unhelpful and not told me much about it so I have had to do my own research.

Any advice or opinions would be super appreciated as this is not a decision I thought I’d have to be making at 23 🩵🩵