Toddler w/ Reactive Airway Disease
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Dealing with the same thing over here. She’s having a coughing fit tonight so we’re on egg shells because sometimes a really bad night is followed by a trip to the ER for a breathing treatment the next day 🥴. @Melanie :) They also think my daughter will have asthma (has food allergy and dry skin which is often correlated with asthma; my husband had childhood asthma) but is too young to diagnose. Can either of you share what you have found most helpful?
My 11 month old has reactive airway disease. Keep up with her meds, nebulizer as necessary. Reduce asthma triggers in my home. You can find a home asthma triggers checklist online to help!
@Katy eczema is what my babygirl has as well
@Abbie what meds were your prescribed? And weee you given a nebulizer for @ home? We have an inhaler for wheezing and respiratory distress and recently started allergy medicine to see if that would help. I haven’t felt very satisfied with the care so far and would love some more information. I will also check out the checklist as well.
@Katy She has fluticasone (steroid) inhaler 2x daily. We also have albuterol inhaler and nebulizer as needed based on symptoms or illness. We do have a nebulizer at home we got it at our first pulmonologist appointment. My daughter’s is two-fold. Asthma runs in the family and I have it so I was expecting unfortunately for her to have it as well. She also has feeding issues and dysphagia so the albuterol nebulizer and inhalers help with opening her airways in that capacity too. Has your kiddo been referred to a pulmonologist? I actually work in public health in asthma specifically so would be happy to point you towards resources!
My suggestion from personal experience; Breathing treatments work better and last longer than the inhaler. Inhalers with the spacer is not effective at all… they barely get any of the actually medicine utilizing the spacer… Once again it worked for us and it’s just a suggestion
We have not been referred to a pulmonologist. Most of our conversations have been with the ER or Hospital staff. They only prescribed the inhaler with the spacer and when that doesn’t help or she’s not getting through the 4 hours between doses of the inhaler we are just supposed to bring her to the ER for a breathing treatment. @Melanie :)they did make it seem like the inhaler is just as effective as the nebulizer but obviously we still end up having to get it at the ER and EVERYONE (non medical world) says we should have a nebulizer. I was planning to outright ask if they will give me one if we have another ER visit. @Abbie I am definitely interested in resources. We’re are already a little over $2000 in hospital visits since she started having these issues in July and everytime she starts to have a coughing fit I feel so stressed and afraid we’re going to have to take her to the ER. And then I over analyze whether the symptoms are bad enough or if I should wait longer.
@Melanie :) yea they said that after 2 it could turn into asthma or go away completely 🤷🏽♀️🤦🏽♀️
@Katy the fits always get bad at night 🤦🏽♀️ my daughter spent 3 days hospitalized when she was first diagnosed she was like 8 months then back in July she was in the PICU on oxygen for 5 days 😩 it was the worst thing ever . All bc of a common cold she caught at daycare. The doc says to stay away from sugary drinks and food it causes mucus congestion in the kiddos .. @Katy how old is your little one ? Novas doctor has her on a shot of flovent every day and nebulizer or albuterol as needed.
@Abbie ahhhhhh and come to find out a FUN FACT LADIES IF YOU HAVE A LOT OF HOUSEHOLD PLANTS THAT CAUSES MOLD AND CAN IRRITATE THIS DISEASE IN LITTLE ONES supposedly bc of the water in the soil that just sits there 🤷🏽♀️
@Melanie :) soooo i’m with you on that although the doc said the inhaler is more effective I feel like it the opposite but there are side effects for both .. when I give her her nebulizer her heart starts beating like crazy and this girl gets wired but with the inhaler she gets cranky and irritable. Doc says the kiddos can get “roid rage” bc it’s a stimulant but 🤷🏽♀️ sheesh. my daughter be ready to rip your head off 🤣
For sure it’s scary but try to find her triggers and avoid them as much as you can..
My daughter was diagnosed with that at 2, she is 6 now and was formally diagnosed with asthma. She also has food allergies. She uses an inhaler with a steroid has a spacer (this is the best to use because they get more of the meds in their lungs, when not using it the meds cost the mouth) 2 puffs once a day, when she is starting to get sick she uses it 2 puffs 2x a day. She has had pneumonia 2x. We have a nebulizer at home so when we start seeing changes or her coughing we do breathing treatment every 4-6hrs for a few days. This really helps her. Also just a little note for those who use the steroid, make sure to rinse their mouth out afterwards. Steroids will also cause issues with teeth.
@Amanda oh wow had no idea about the teeth situation 🤔 thanks
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@Sam.iiAM she will be 18 months next week. You guys definitely seem to have been given a very thorough preventive plan. I feel like ours is just reactive once things escalate. And we have NO IDEA what her triggers are. We are suspecting pet dander as we have two pets and a lot of the places she visits regularly (family and babysitter) also have pets. That’s why they had us start the allergy meds to see if that would help. We have gone longer without an episode 3 weeks vs 1-2 weeks. But not a complete fix unfortunately.
@Katy unfortunately there won’t ever be like a complete complete fixes
My daughter had it… they said they only classified it as such bc they are too young to be diagnosed either asthma… once she got of age she was diagnosed either asthma.. atleast that was the case for us