Fb has 2 great support groups, one for while you're experiencing this and one for when you're ready to try to get pregnant again:
And it looks like you're in England. Charing Cross is a world leader in molar research, so having that right in your country is a huge benefit. They have more updated information and statistics on molar pregnancies than any countries in the world. My doctors in the US utilized their research for my entire pregnancy so I could carry my son without terminating.
@Britt Thank you so much for replying, im sorry you had to experience this whilst also carrying a little one That must have been so nerve-racking and stressful. Also, congratulations on the incoming little one :) I was giving some printouts with information and links to websites 3tc that could help, but sometimes i think having that personal experience from someone helps so much more than reading very clinical numbers and statistics The statistics are all in my favour of having a healthy pregnancy and baby after this experience But im just sp worried already about the possibilities of this happening again :(
@Chelsea I definitely understand that! I was so worried about it we were discussing starting ivf in July of this year when I found out in March I had accidentally gotten pregnant. It's so stressful but can absolutely work out!
I had a partial molar pregnancy that ended at 8 weeks June 6th 2023 and I’m pregnant right now, everything is healthy every test has come back perfectly fine, so far so good 11 weeks. They did extra testing when they found out I was pregnant it was like a weekly check up for a while until they were like okay everything has been stable stable stable. I hope to remain stable, but I understand your pain. I had a very similar situation and I was afraid I wouldn’t be able to be a mom. But here I am.
Hi, Firstly I’m sorry you are experiencing this , it’s really hard. I had a partial molar last year with a very similar story to yours where we had seen a heartbeat but not at the 12 week scan where it was called a missed miscarriage. It took from my first surgical management (I needed two) to being discharged from Sheffield (who are specialists in molar pregnancy) 4 and a half months. Positive end: we conceived quickly after discharge and I’m now sat with my 12 week old asleep on me. It can be a long journey to be cleared to conceive again and a worrying one but it’s going to be okay 🤍
@Karla, congratulations on your incoming little one, sending all the best energy :) How have you found your anxiety since becoming pregnant again ? I already suffer from anxiety that I've had since being a teen, so I worried this added anxiety could cause me more problems having a healthy pregnancy
@Ellie , congratulations on your little one hun, so glad you were able to bring the little one here safely Im looking forward to being able to try again, but im scared. My husband bless him is really struggling, he's scared of the risks to me going forward. :(
On this thread and looking for a bit of advice. Been told my missed miscarriage had Triploidy, google says that’s molar, but that the placenta had no hydatidiform, google tells me that means no tumours etc, buut I have retained tissue and positive hcg two months later. I have a consultant appointment Tuesday but I don’t know what the hell is going on. Has anyone had this please?
@leah im so sorry leah that i did not reply, i deleted the app for awhile whilst i was trying to heal How did you get on? Were you informed if you had a partail/complete molar ? X
I had RPOC that took six months to go away. Was very miserable!
I had a complete molar pregnancy with a viable twin. I had my hcg taken and it took 12 weeks for me to reach zero on my own, so no chemo needed. Needing chemo from a partial molar is much lower than from a complete molar, and I know complete molars have an 85% of no chemo needed. The wait time is extremely important because they 1) need to make sure your hcg drops because going up could mean cancer and 2) you have a higher risk of a repeat molar pregnancy if you get pregnant again before being cleared. It's hard and traumatizing, but most women don't go on to have repeat molars. And having the surgical procedure increases your odds of not needing chemo. My son who had the molar twin was born at 26 weeks and is a healthy 22 month old now. I'm also being induced in 4 days at 39 weeks with a completely healthy baby. It will happen!