Advice

Hi, my daughter has recently been diagnosed with angelman syndrome and I was wondering if anyone on here had a child with the condition and could give me any advice on what to expect she is 2 years 7 months old.

Show your support

hope you okay mumma! its hard getting diagnosis! i dont have a whole lot experience. i use to be support worker so have supported people with it. but have you looked into support groups online- fb groups, search #angelmansyndrome if use tiktok or instagram and you can find other families and individuals. my daughter has spina bifida and found many groups/families on these platforms world wide. its great seeing individual their families and diff things that do in diff countries etc x

Hi, my daughter doesn't have that condition, but has 2 chromosome conditions. We have got advice and support from Unique www.rarechromo.org They're a great charity and have a Facebook support page too. It helps when you get to know other parents adjusting to similar things xx

Thank you both 🙏

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