Expectations and lots of venting
How are other parents coping with the never ending drag of their newborn preemie being in hospital. I consider myself fortunate that my 34 weeker was born a good weight and relatively well. She's overcome a lot so far but we keep being set back by reflux that hasn't yet responded to treatment. They keep saying "give it time she'll grow out of it" but it's been almost 4 weeks. I'm so tired of travelling to and from the hospital constantly to see her. I want to walk around with her in my arms but we're restricted by her oxygen saturation monitor and oxygen tubes. They've tried so much to get the reflux to settle down, they say she doesn't really need the oxygen but it helps when the reflux causes her to strain.
I just wish there was an end in sight and I could bring her home and start our lives together.
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@Kristal I do try to, I know compared to other parents this isn't anywhere near as hard as it could be. I'll keep trying to think that every day is a day closer to home. These days seem to take so long but I'm grateful she's safe and well cared for. I just wish I was out the other side of this
My little one was born at 28+6 and spent 86 days in the nicu. We managed to get her reflux under control with gaviscon and omeprazole which we are still giving her now (she was born end of may and came home the week after her due date in august) We also came home on oxygen so we still have the restraints of that at home and out and about, but it far out weighs anything having her home! It gets better i promise! X
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I’d say count your blessings that she’s at that stage, my LO was born at 26weeks and needs support breathing, I say everyday is a day closer to being healthily discharged.